Our Mission? BEAT NB.
The Friends of Will Cancer Foundation was started with the sole mission of raising money to help create treatment options for children with Relapsed Neuroblastoma. We are all volunteers and no one in compensated for this work.
Neuroblastoma is a common pediatric cancer that is extraordinarily deadly. After enduring the most intense chemotherapy regimen given to any human beings these infants and toddlers - these children - end up relapsing more often than not.
Once this disease comes back there is no cure.
The treatment options then offered to these children once they do relapse is often much too toxic for their ravaged bodies to handle after what they had to endure during upfront therapy. As a result they spend more time trying to simply recover from these therapies so they can receive even more treatment than they spend actually LIVING life.
It is well beyond the time when these CHILDREN should have been offered treatment options that infuse hope, a decent quality of life, and give them a chance to simply LIVE. It is not a lot to ask, however, today needs to be the first day where relapsed neuroblastoma is transformed from a death sentence to a chronic health condition.
Currently these children can not be saved - not because it is impossible - but because there is NO focussed effort on this patient population.
We aim to achieve our mission through raising money and funding relevant research and clinical trials with doctors and scientists who have the same beliefs. Our work supports the Neuroblastoma Fund at the Van Andel Research Institute which is home to the Neuroblastoma and Medulloblastoma Translational Research Consortium. The spirit of collaboration shown by these dedicated researchers, scientists, doctors, families, and foundations has proven that change is just around the corner. Change you can help make happen with your support.
Tax Id 27-2314549 - View the Friends of Will IRS determination letter Here
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Presentation by Will's dad about why this work is so important.